After having all of those results, and calls, and total confusion, I took a few weeks off from looking on the internet, or even thinking about my sickness. I had almost a month for a visit with the endo, so I needed a break. MUCH NEEDED!!!
July 19 - Endo, Alele, looked through all my labs, agree with the diagnosis of Graves, gave me my choices to "cure" me. I could stay on anti-thyroids for awhile, but with my antibodies so high he did not feel I was a candidate for going into remission. Other real choices were RAI Ablation, or Surgical Ablation, TT. He needed to get my levels closer to nornal for either procedure I choose. So, he re-ordered lab work before giving me new prescription instruction. Because of the hives caused from the methimazole (meth), he said he'd probably put me on PTU. He also said if I choise the RAI, he would want to do a biopsy to determine if the nodules were cancerous. If I were going to remove it anyway, then pathology could get ahold of it once it had been removed. He also made it clear that because of the nodules I was NOT to take this lightly. He wanted me to make my choice without delay. He said he would give me one week.
Dr. Alele was wonderful and made me feel that he would help me become knowledgable about each procedure without forcing one upon me, he would sit and listen to me. He made sure I had every question answered, and even said I could call him. He did not rush me. I thought maybe I got a good doc... now I'm not so sure. A week later I called his office with a number of questions to help me decide which ablation procedure would be better for me and my family. No one would help me. I couldnt get a straight answer from anyone. Finally after 3 days on the phone trying to get ahold of Dr. Alele, I find out the prior week was his last week to practice here in Charleston. ..
WHAT?!?!?!
For the first 2 days they didnt even want to tell me he was no longer practicing. I wonder what happened? But my priority is my own illness. Can someone please answer my questions so I can make a decision? Can someone please tell me if I need to get back on my meds?? Oh, you have the lab results in... and my levels are creeping toward normal. What does that mean? Oh wait there is no one to tell me. Oh, you can get me in Sept 28th... wait do you realize just last week I was told I could have cancer. Please help me find out!
So after several days of pleading, and begging, and bit(hing... they squeezed me in with another endo in the same practice. It was in a different office across town... but I didnt care to drive over there! I just wanted to be seen. My new appt would be with Dr. Kwon... scheduled for Aug 5th.... whew, ty!
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